As regular readers will know, since 2008 I have had live-in volunteers, 12 in total from countries around the world. What you may not be aware of is that in early January I ended this for a number of reasons I will discuss below, and started to employ traditional personal assistants at the weekends and … Continue reading Giving up my volunteers
It is no secret that I am concerned at how Personal Independence Payments are regarded as the one and only solution for anyone with any form of impairment, which can indeed mean anyone. The rights to welfare agenda is based on a tragedy model of disability, where payment is offered as a pity motivated compensation to … Continue reading Everyone should get the real support they need
I want to take a week off politics to talk about a new idea I have been considering regarding independence for disabled people. Independence is a confusing term in relation to disabled people. There has been two main definitions of independence.The first definition can be seen as connected to the medical model of disability. Here, … Continue reading Redefining Independence for Disabled People
For the last few months, there has been endless talk within health and social care fields about a 'social care' crisis that reached fever pitch when the Chancellor's Autumn Statement did not mention social care, let alone providing additional funding. Many people have commented on the situation but very few users have had a say, so … Continue reading A user perspective of the Social Care Crisis
It is very easy to complain about how a system is not working but it is much harder to come up with new solutions to replace broken ones. It is also easy to talk about rights but much harder to ensure any system implement rights on an individual level, providing real benefit as oppose to simply political … Continue reading Impairment-related Assessments should be about removing barriers
There is currently a lot of talk about adult social care and the level of funding it receives. Clearly, more money is needed but I feel it is important that new monies are allocated in the most effective way, and that any ineffective or wasteful spending is reviewed. It is important that the national government and … Continue reading What could adult social care look like in 2046?
We currently live in an environment of label based entitlements. By this I mean many people with impairments feel their labels mean they deserve specific benefits and support regardless of what they may actually need, and with little regard to what having the support would achieve. The fight to obtain the support is seen as … Continue reading Changing the Conversation on Health and Social Care
I dislike the term 'carer' for a number of reasons as well as the whole carer rhetoric, although I am quite aware that this is an sensitive subject for most people. Throughout my life, the term 'carer' has been used to undermine my intelligence as someone most people regard as needing someone to look after … Continue reading Do carers really know best?
I have been involved in User Involvement in one way or another for the last 20 years and it is important to say I am not against the principle at all. However, a few weeks ago I briefly saw a photo of a slide of a title of a paper presented somewhere by Peter Beresford, … Continue reading Is ‘User Involvement’ used to keep people disempowered?
There was a time, before the 1990s, where all disability charities had to do to raise money was put a disabled person, ideally a child, on a poster looking pitiful and describe how miserable their lives were to be on a winner. Then disabled people started to have a voice and made it very clear … Continue reading Campaigning Is the Modern Tear Jerker