While I was in the hospital over the summer, I started to watch BBC Breakfast, out of boredom as opposed to anything else. Around 8.40am each morning, they had a 'general information' piece which often involved someone important from a charity talking about their latest research, backed up by a few personal stories from individuals … Continue reading Is the third sector making a mockery of research?
I read wih dismay and frustration at the Charity Sector's response to the government's proposal that monies given to Charities by government organisations for services should not be used for lobbying. The Charity sector claim this is a vow of silence as they represent 'the vulnerable' against the Big Bad Government. But lets just clarify … Continue reading Surely we all want Best Value for public monies?
I am very aware that the majority of readers will find the term 'spastic' derogatory but the reason I used it was it attract you to this article about cerebral palsy. The term was once very acceptable and before 1994, Scope was called the Spastics Society. My full medical condition is Spastic Quadriplegia Athetoid, which … Continue reading Don’t forget the Spastics
Several months ago, I applied for Leonard Cheshire Disability (LCD) ‘Access all Areas’ scheme that supports disabled campaigners to attend a party conference. My application was upfront about who I was and I believe on that basis, I was successfully selected to attend the Labour Party conference. Unfortunately, due to specific circumstances I was not … Continue reading The real reason I did not attend the Labour Party conference
I realised a long time ago that no one can properly represent disabled people, a total of 12 million people if we believe the statistics, but this does not stop many people trying. The problem is as I said in a previous article that there is firstly no clear definition of what is a disabled … Continue reading No One Can Represent Disabled People
I believed there was a time when charities gave money to individuals when they were in crisis or needed specific support with equipment and other costs, and that this time is going or has gone. Now so many charities are simply 'not for profit but still big salaries' businesses who run services on behalf the … Continue reading Why do charities not help individuals anymore?
It is clear to me that many charities have grown so big, so powerful and so commercial that in reality they are no difference than commercial enterprises. Many charities no longer provide money to individuals to help them in whatever way but simply 'third sector' providers of government services on the cheap and with the … Continue reading You are not a charity
I have not discussed it very much but as well as the medical and social model of disability, there is also a tragedy model of disability, which portrays disabled people as victims, unable to contribute properly and equality in society and constantly dependent on the charity of others for their existence. It is clear to … Continue reading Is the tradegy model of disability winning?
It is worrying how many medical charities have adverts on TV proclaiming you have a moral and social duty to donate money to them to solve Cancer, Heart disease or some other condition. My concern is if the NHS is free at the point of delivery, why do have a give money to charities so … Continue reading Beware of the medical research charities
When you give £1 to charity, do you really know when the money is going? Because it is guaranteed not to be where you believe it to be going to. Why is health research apparently funded by charities but the NHS can not afford the breakthrough drugs and treatments because the drug companies complain they … Continue reading Charities must be made more accountable